On the Record

Saying the quiet parts out loud.

Sometimes I’m asked to speak publicly about my experience with brain cancer. I’ve collected those interviews and discussions in one place, so you can take them in at your own pace.

9 News Australia · 2 August 2026

Price of life-changing brain cancer drug slashed on PBS

Vorasidenib went onto the PBS, and a treatment that had been out of reach for most families stopped being a question of what you could afford. 9 News covered what the listing means for people living with a brain tumour diagnosis. It is easy to hear a story like this as a policy change; it lands very differently when you are one of the people it is about.

Today, Channel 9 · 3 August 2026

Vorasidenib is on the PBS

The same news, this time on the Today couch. A few minutes is not long to explain what a drug listing means to the people waiting on it, but this is the part I wanted to get across: the relief is real, and so is everything that comes after it. Access to treatment is the beginning of the story, not the end of it.

Looking for a speaker or a story?

I’m happy to talk to media, and to speak at events, about diagnosis, recovery, identity, and the practical work of building a second act. Plain language, no gloss, no miracle promises.

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